We are on our way to Detroit tomorrow night (it's about a 7 hour drive but for us add a couple of more to that). Sunday we'll begin with a VEEG (it's a 24 hour EEG with video) and we'll stay in the hospital. On Monday morning we go downstairs for a PET Scan then off to the International House for the night. Tuesday morning we have an appointment with Dr Rockstar and then back home.
This is it! I'm so scared, excited, nervous, anxious, happy. I'm trying not to get my hopes too high but that's impossible. Well, impossible until you read so many stories about kids who have seizures, went to see Dr Rockstar, and were told they weren't candidates for surgery.
Now when I read those stories I cry. I want this surgery so much for Noah. I feel like it's his only hope to have any quality of life.
Bottom line: The seizures have to STOP. Meds don't work. We aren't sure about the diet (even that isn't a long term solution most of the time). What's left? Surgery.
Please keep Noah in your prayers. We'll let you know what we find out. Good or bad.
Thank you all for your support and love you send our way.