We are waiting for results to come back from the lab. Guess it takes a while since they are doing some special ninja genetic work up to further investigate the potential metabolic disorder that is suspect.
We met with the surgeon. I really liked him. He assured me if we don't use the G-tube we can just pull it and let the hole close up (kind of like an earring hole). Weird! But love that it's not a permanent fixture unless ABSOLUTELY necessary. I like when they fool me into thinking I have some say in the whole ordeal. Do they offer a special class in med school for that?
I've emailed the brain surgeon in Michigan (Dr Rockstar). He PROMPTLY emailed me back saying he'd be happy to see Noah and to run some presurgical tests. He left an email and a name of a woman who will work with us to set everything up. Hopefully this delay in the keto diet is a God send and will give us time to do the tests before we start (since we can't do them while on the diet).
I'm trying my best to just let things happen without trying to "force" them. I have to remind myself that things happen for a reason and happen just like they are supposed to (whether I like it or not!).
So, that's about all. We've started Phenobarbital too. Hopefully it'll help alleviate some of these awful seizures until we can get a more definitive treatment for our little guy.
Go Patriots! Since Noah will be "Tom Brady-cardia" for Halloween this year. Love it!
We do follow some blogs. You can check them out on the left side of our page. Very strong people and their little ones who are on this IS journey too. Please keep Trevor and his family in your prayers. He just had brain surgery to remove his seizure monster. And poor little Kendall is back in the hospital. Please pray she gets better soon. And as always, Noah can always use some "shout-outs" to the Big Guy. Thanks and God Bless!