Once we got to take Noah's feeding tube out I swore I'd never complain about feeding him. All I wanted for so long was to get rid of that f'n thing and feed my child like a normal mom. Once again, God threw me a nice "gotcha!". EVERY time I feed Noah he throws up. I hate feeding him. It's awful. It's awful for him and for me. I dread, with every fiber of my being, feedings. And believe me, there are many. I'm trying to cut back the volume in hopes he will be able to keep a smaller amount down so, in turn, I have to feed him more often (I was already feeding him 7 times a day). So now it's 10. All I do is feed him, wait a few minutes, clean up the feed from my bed (as he most definitely threw it all up), change his clothes, my clothes, find Hanna (she always runs and hides now), and make another feed.
Oh, and I count seizures.
That is my day.
Can't I just sleep through all of this and wake up when it gets better?
Will it EVER get better?
It's not looking very likely.