It's a reality I don't let myself quite grasp.
At the forefront of this affliction that has incapacitated my son is the obvious:
He doesn't develop. He seizes a lot. He's not well and he's not "right".
It's not good.
But you (as a parent) don't let yourself actually realize how not good this whole ordeal really is. It isn't until someone else posts a blog and you follow the link because you are simply curious. You want to read about other families that have to endure all of this so you don't feel so alone in this fight.
So I did. I followed the link. I read the article.
And I got a reality check.