C'mon KETO Diet! It has to work, right? It at least has to help!
The seizures are coming fast and more furious than normal and I'm about to go CRAZY! I'm not sure if I've ever posted actual numbers but when Noah was hooked up to the VEEG they saw 31 seizures in that 24 hour period. I usually count about 15-20 (These are clusters. I'm not counting the actual individual seizures) a day but I do sleep on occasion so I miss some. I tried to count individual seizures one day and a single spasm cluster got up to 49 and I just couldn't keep up. He needed me to comfort him more than I needed to count.
We are increasing his Phenobarbital and hopefully that will get us to the diet and Noah will get some relief!
Mama is getting desperate!